Trigeminal Neuralgia: TN stole my life and I want my life back

  • Sumo

I Want My Life Back

I felt the title for this blog was warranted due to the fact that my life has totally changed since my first bout with Trigeminal Neuralgia (TN).

My family used to go to Kings Dominion (amusement park) once a year.  The last few years I realized that I was no longer able to ride rollercoasters or any ride that jerked.  That consisted of almost every ride in the park, including bumper cars.  My mom and oldest daughter do not ride rides so they would watch all the children.  I became part of the dreaded babysitter club.  No fun at all.

I used to love sitting outside enjoying the strong breeze before a storm.  Now when the wind starts blowing I head for shelter.  If the wind gets inside of my mouth 90% of the time it will trigger my TN to flare up.

I can no longer receive pats on the back for a job well done.  If someone even looks like they are raising their hand to shake my bottom I automatically have to let them know that they cannot shake me.

I can no longer blow on the bellies on my grandchildren to make them laugh.  The vibration triggers a TN flare up.

I can no longer give raspberries.  I guess I’m too old for that any way.  The vibration will trigger a TN flare up.

Sometimes I have to tippy toe because believe it or not sometimes walking too hard can trigger a TN flare up.

Being in a loud room (meeting, party, concert, etc.) can trigger a TN flare up.

Every morning I do not know if brushing my teeth or washing my face will trigger a TN flare up.

Every day although I cannot do the above things any more, I am still happy to be alive.  I bask in the moments when I am pain free.

I can say that I am extremely exhausted when I am not in pain because I take advantage of every pain-free moment  to catch up on what others call little things, that I have been missing out on.

~ April

crying-eye-teal-ribbon
Please help find a cure
so no one else has to cry

 

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